Diabetes and the F word

dreamstime_m_14314725 (2)

The “F” word is common when you live with diabetes –  Food, Fear, Frustration, Friendships, Fitness, Forever, Fingers, Feelings, Foresight (is always a good thing), Forgetting (to take your medication,or if you have taken it!) not Forgetting (ever, that you have diabetes), Family (you need them on your team), Forgiving yourself (never blame yourself – for anything), For goodness sake and yes, the big four letter F bomb and yes I am dropping it so apologies if you have a no swear policy – Fuck it all – that is  definitely an often used word when it comes to diabetes in my house!

Do you have any to add?

Yesterday, as I was waiting out an hour or so to eat, after making my very healthy weight watchers fruit and natural yoghurt dessert and finding my levels still sitting at 14 mmol after 2 hours and a bolus, I watched my family getting on with their lives. Grabbing some food without thought. Not needing to prick their finger every 30 minutes to see if they were coming down enough to eat yet. Not deciding that maybe a pump site change was needed, again. Not worrying about whether they would now crash, or feeling totally pissed off that they couldn’t eat yet and could just look longingly at their bowl of yoghurt and kick the cat who also was looking longingly at it….The busyness of life just goes on while those of us with diabetes face our silent struggles or sometimes not so silent.

And in that moment I felt so alone.

Do you have those moments?

That is the main reason I started Diabetes Counselling Online all those years ago – to stop people like me, like you, like us – from feeling alone. It has been a long journey with ups and downs and we are still here. Diabetes Counselling Online will change again in a few months when our funding ends. But you can guarantee that we will still be here in some form with that same goal – telling stories, sharing support and hoping that we can all feel a little less alone.

If you have ever had any connection with us over the last 15 years we would love it if you can fill out our short survey below. It will help us tell our funding body what we have been doing well and not so well. Oh another F word- Funding- and Thank you (well not an F but we are so grateful to have had this funding support).

thank you sweet friends and here’s to the best F word of all – Friendship – oh and that Featured image of man’s best Friend? That’s because life should so much be a party, diabetes or not- go forward and live it lovelies

https://www.surveymonkey.com/s/XWF355B

xx

Helen

 

 

10 Comments

  1. Flamenco2625 on February 14, 2015 at 9:20 am

    I just joined the group. I have diabetes type 2 since 1993 am on four shots of two types of insulin lantus and novarapid. My levels can be high and low causing hypos. Have anice weekend.

    • Helen-Edwards on February 18, 2015 at 10:15 am

      welcome 🙂

  2. Mary on February 17, 2015 at 2:34 pm

    hi I just found your website thru the app HypoHelp… I have had diabetes for 30 years (ten when diagnosed) and I’ve just come back from my visit to the endocrinologist… I am at a point where I have tried and tried and tried to be committed to improving my control… I’m feeling exhausted and frustrated… I always have an excuse for why I didn’t get better BSLs etc… There was always this stress or that drama to explain why I’m distracted from focusing consistently on my health… I figure maybe I need to connect with some other diabetics on this journey… I’m sick of my excuses… Anyway – I’m glad I found you and will go read some more… Thanks

    • Helen-Edwards on February 18, 2015 at 10:13 am

      welcome! Lovely to have you here. It is so normal to feel like this – making contact with other people who get it makes all the difference. I look forward to connecting more

  3. Sue on February 19, 2015 at 9:50 am

    Hi Helen,
    Sorry to hear DCO has lost funding. I first read about the site when it was in Diabetes Conquest when you first started the site in about 2000 or 2001, but didn’t actually visit until 2011.
    When I did start to drop by DCO occasionally, I had ALWAYS felt so alone with my diabetes. It had always separated me from everyone around me. So finding your site and others was huge for me – there are other people out there experiencing the same things, it’s not just me. So many of the posts on this site I can relate to – they are about places I’ve been on my D journey. And DCO has been really important in helping me work through my D issues. I don’t agree with everything you say, but your work is valuable.
    DCO is one of a multitude of small programs that have received small amounts of government funding whose work prevents much larger costs to the government down the track. These shortsighted cuts will cost a future government a fortune and that is unfortunate.

    • Helen-Edwards on April 1, 2015 at 9:47 am

      Hi Sue – thank you so much. Our funding has never been ongoing. I self funded the services for the first 2 years. I was then able to get small amounts of funding over a few years via the NDSS. That then stopped for a while and was then funded again under the NDSS for about 5 years. We then lost that funding again and struggled through for a couple of years. In 2012 I was able to win the current 3 year grant directly with Department of Health which has enabled us to develop a sustainable model for our support services and create products such as our Diabetes Dino book and kids toys, apps and e books, to support the ongoing costs of things like website hosting etc We are not going anywhere! Our 1-1 email counselling and health consults will be ceasing but we will still be blogging regularly and connecting to you all via discussions here on the blog, as well as providing up to date information and research. We will also still be running the groups on Facebook with the help of our lovely little group of volunteers – so it is just a new phase. The current grant was always only a 3 year grant. Thanks for your support 🙂

  4. Deb on February 19, 2015 at 1:02 pm

    I was boarder line for quite a few years now I am type2. I can so relate to how your feeling. My biggest problem I don’t eat vegetables or salads they make me sick. I’ve never been to a educator or a dietician

    • Helen-Edwards on April 1, 2015 at 9:41 am

      that must be hard Deb – is there a reason why they make you sick?

  5. Barry White on February 23, 2015 at 10:36 am

    Hi I have had Type II Diabetes for about 30 years. My HbA1c averages about 6.5 and My sugars are well controlled. I had a Quadruple heart by pass operation 10 years ago and a Radical Prostatectomy 3 years ago. I eat a sensible diet but do not worry too much about counting calories. I can’t exercise because all the discs in my back are compressed as well as having a couple of bulging discs in my lower back from heavy work in the building trade and this causes me too much pain but do not take any pain killers. I have another problem called Conns Syndrome or Hyperaldosterism. This is caused by benign tumours on adrenal glands which in turn sends my blood pressure up. To overcome the high blood pressure I take at least 4 blood pressure tablets with a total of about 10 drugs that I take altogether for various other things too many to enumerate. I have an excellent doctor who keeps an eye on me who I see about every three months. I consider the fact that I have positive mental attitude that I suffer from no depression and never really get sick.

    • Helen-Edwards on April 1, 2015 at 9:35 am

      Hi Barry thanks for joining us. It sounds like you have some every complex conditions to manage and you have great support.I think your attitude has a huge impact on every aspect of your life. It is fantastic that you can take such a positive approach to your health 🙂

Share your thoughts